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Use of GoFundMe® to crowdfund complementary and alternative medicine treatments for cancer

dc.contributor.authorSong, Sikai
dc.contributor.authorCohen, Andrew J.
dc.contributor.authorLui, Hansen
dc.contributor.authorMmonu, Nnenaya A.
dc.contributor.authorBrody, Hartley
dc.contributor.authorPatino, German
dc.contributor.authorLiaw, Aron
dc.contributor.authorButler, Christi
dc.contributor.authorFergus, Kirkpatrick B.
dc.contributor.authorMena, Jorge
dc.contributor.authorLee, Austin
dc.contributor.authorWeiser, Jeremy
dc.contributor.authorJohnson, Kelly
dc.contributor.authorBreyer, Benjamin N.
dc.contributor.corporatenamePontificia Universidad Javeriana. Facultad de Medicina. Departamento de Cirugía y Especialidades. Urologíaspa
dc.contributor.corporatenamePontificia Universidad Javeriana. Facultad de Medicina. Hospital Universitario San Ignaciospa
dc.contributor.javerianateacherPatino, German
dc.coverage.temporal2012-2019
dc.date.accessioned2022-05-31T17:11:30Z
dc.date.available2022-05-31T17:11:30Z
dc.date.created2020-03-26
dc.description.abstractPurpose: Complementary and alternative medicine (CAM) use is common amongst cancer patients. However, there is growing concern about its safety and efficacy. Online crowdfunding campaigns represent a unique avenue to understand the cancer patient’s perspective for using CAM or declining conventional cancer therapy (CCT). Methods: Five hundred GoFundMe campaigns from 2012 to 2019 detailing financial need for cancer treatment were randomly selected and reviewed for endorsement of CAM use, reasons for using CAM, and reasons for declining CCT. Descriptive statistics were used to compare patient and campaign characteristics between 250 CAM users and 250 non-CAM users. Results: Compared to non-CAM users, CAM users were more likely to be female (70% vs. 54%, p < 0.01), to report more stage IV cancer (54% vs. 12%, p < 0.01), and to have a history of delayed, missed, or misdiagnosis (10% vs. 4%, p < 0.01). Reasons for using CAM include endorsing curative/therapeutic effects 212 (85%), pain/stress reduction 137 (55%), and dissatisfaction with current or past medical treatment options 105 (42%). 87 (35%) CAM users that declined CCT reported that they wanted to try to fight off cancer using CAM first 57 (61%), that CCT was too “toxic” to the body 39 (42%), and cancer was already too advanced, so that CCT would be futile or too aggressive 25 (27%). Conclusion: Cancer patients on GoFundMe using CAM highly value quality of life, comfort, and autonomy. Physicians should educate themselves on CAM to set realistic expectations and provide comprehensive counseling of the risks and benefits of CAM usage to patients who choose to use CAM to either augment or completely replace CCT.spa
dc.description.esciNospa
dc.description.indexingRevista Internacional - Indexadaspa
dc.description.orcidhttps://orcid.org/0000-0002-7495-5139
dc.description.publindexA1spa
dc.description.quartilescopusQ2spa
dc.description.quartilewosQ2spa
dc.formatPDFspa
dc.format.mimetypeapplication/pdfspa
dc.identifierhttps://link.springer.com/article/10.1007/s00432-020-03191-0spa
dc.identifier.doihttps://doi.org/10.1007/s00432-020-03191-0spa
dc.identifier.instnameinstname:Pontificia Universidad Javerianaspa
dc.identifier.issn0171-5216 / 1432-1335 (Electrónico)spa
dc.identifier.reponamereponame:Repositorio Institucional - Pontificia Universidad Javerianaspa
dc.identifier.repourlrepourl:https://repository.javeriana.edu.cospa
dc.identifier.urihttp://hdl.handle.net/10554/60046
dc.language.isoengspa
dc.relation.citationendpage1865spa
dc.relation.citationissue7spa
dc.relation.citationstartpage1857spa
dc.relation.citationvolume146spa
dc.relation.ispartofjournalJournal of Cancer Research and Clinical Oncologyspa
dc.rights.coarhttp://purl.org/coar/access_right/c_abf2spa
dc.rights.licenceAtribución-NoComercial 4.0 Internacional*
dc.rights.urihttp://creativecommons.org/licenses/by-nc/4.0/*
dc.subjectComplementary And Alternative Medicinespa
dc.subjectSocial Mediaspa
dc.subjectCrowdfundingspa
dc.subjectCancer Treatmentspa
dc.subjectPatient Perspectivespa
dc.titleUse of GoFundMe® to crowdfund complementary and alternative medicine treatments for cancer
dc.type.coarhttp://purl.org/coar/resource_type/c_6501spa
dc.type.hasversionhttp://purl.org/coar/version/c_ab4af688f83e57aa
dc.type.localArtículo de revistaspa

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