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The Latin American network for congenital malformation surveillance : ReLAMC

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dc.contributor.authorOrioli, Iêda Maria
dc.contributor.authorDolk, Helen
dc.contributor.authorLopez-Camelo, Jorge
dc.contributor.authorGroisman, Boris
dc.contributor.authorBenavides-Lara, Adriana
dc.contributor.authorGimenez, Lucas Gabriel
dc.contributor.authorMattos Correa, Daniel
dc.contributor.authorAscurra, Marta
dc.contributor.authorde Aquino Bonilha, Eliana
dc.contributor.authorCanessa-Tapia, Maria Aurora
dc.contributor.authorAraújo de França, Giovanny Vinícius
dc.contributor.authorHurtado-Villa, Paula
dc.contributor.authorIbarra-Ramírez, Marisol
dc.contributor.authorPardo, Rosa
dc.contributor.authorPastora, Dania Maria
dc.contributor.authorZarante, Ignacio
dc.contributor.authorSchneider Soares, Flávia
dc.contributor.authorMartinez de Carvalho, Flávia
dc.contributor.authorPiola, Mariana
dc.contributor.corporatenamePontificia Universidad Javeriana. Facultad de Medicina. Instituto de Genética Humana. Grupo de investigación Instituto de Genética Humana
dc.contributor.corporatenameReLAMC Group
dc.date.accessioned2021-05-10T20:52:37Z
dc.date.available2021-05-10T20:52:37Z
dc.date.created2020-12-02
dc.description.abstractenglishThe early detection of congenital anomaly epidemics occurs when comparing current with previous frequencies in the same population. The success of epidemiologic surveillance depends on numerous factors, including the accuracy of the rates available in the base period, wide population coverage, and short periodicity of analysis. This study aims to describe the Latin American network of congenital malformation surveillance: ReLAMC, created to increase epidemiologic surveillance in Latin America. We describe the main steps, tasks, strategies used, and preliminary results. From 2017 to 2019, five national registries (Argentina [RENAC], Brazil [SINASC/SIM-BRS], Chile [RENACH], Costa Rica [CREC], Paraguay [RENADECOPY-PNPDC]), six regional registries (Bogotá [PVSDC- Bogota], Cali [PVSDC-Cali], Maule [RRMC SSM], Nicaragua [SVDC], Nuevo-León [ReDeCon HU], S~ao Paulo [SINASC/SIM-MSP]) and the ECLAMC hospital network sent data to ReLAMC on a total population of 9,152,674 births, with a total of 101,749 malformed newborns (1.1%; 95% CI 1.10–1.12). Of the 9,000,651 births in countries covering both live and stillbirths, 88,881 were stillborn (0.99%; 95% CI 0.98–0.99), and among stillborns, 6,755 were malformed (7.61%; 95% CI 7.44–7.79). The microcephaly rate was 2.45 per 10,000 births (95% CI 2.35–2.55), hydrocephaly 3.03 (2.92–3.14), spina bifida 2.89 (2.78–3.00), congenital heart defects 15.53 (15.27–15.79), cleft lip 2.02 (1.93–2.11), cleft palate and lip 2.77 (2.66–2.88), talipes 2.56 (2.46–2.67), conjoined twins 0.16 (0.14–0.19), and Down syndrome 5.33 (5.18–5.48). Each congenital anomaly showed heterogeneity in prevalence rates among registries. The harmonization of data in relation to operational differences between registries is the next step in developing the common ReLAMC database.spa
dc.description.indexingRevista Internacional - Indexadaspa
dc.description.quartilescopusQ1spa
dc.description.quartilewosQ1spa
dc.formatPDFspa
dc.format.mimetypeapplication/pdfspa
dc.identifierhttps://doi-org.ezproxy.javeriana.edu.co/10.1002/ajmg.c.31872spa
dc.identifier.doihttps://doi.org/10.1002/ajmg.c.31872spa
dc.identifier.instnameinstname:Pontificia Universidad Javerianaspa
dc.identifier.issn15524876 / 15524868spa
dc.identifier.reponamereponame:Repositorio Institucional - Pontificia Universidad Javerianaspa
dc.identifier.repourlrepourl:https://repository.javeriana.edu.cospa
dc.identifier.urihttp://hdl.handle.net/10554/53814
dc.language.isoengspa
dc.relation.citationendpage1091spa
dc.relation.citationissue4spa
dc.relation.citationstartpage1078spa
dc.relation.citationvolume184spa
dc.relation.ispartofjournalAmerican Journal of Medical Genetics, Part C: Seminars in Medical Geneticsspa
dc.rights.coarhttp://purl.org/coar/access_right/c_abf2spa
dc.rights.licenceAtribución-NoComercial 4.0 Internacional*
dc.rights.urihttp://creativecommons.org/licenses/by-nc/4.0/*
dc.subject.keywordCongenital anomalyspa
dc.subject.keywordDown syndromespa
dc.subject.keywordLatin Americaspa
dc.subject.keywordMicrocephalyspa
dc.subject.keywordStillbirthsspa
dc.subject.keywordSurveillancespa
dc.titleThe Latin American network for congenital malformation surveillance : ReLAMCspa
dc.type.coarhttp://purl.org/coar/resource_type/c_2df8fbb1spa
dc.type.hasversionhttp://purl.org/coar/version/c_ab4af688f83e57aa
dc.type.localArtículo de revistaspa

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